Monday, August 8, 2011

I Want it to be Autumn

I'm going to try to post shorter entries more frequently. I hope that will be a schedule I can keep up with, since sitting for long periods is just not feasible anymore and I tend to do better when I can get my complete thought out in one sitting.

I did succeed in getting added to my mother's insurance policy, so next step is to find out the rules for coordination of benefits. If there are things my mother's policy covers that Medicare doesn't, I can submit to them (after getting a denial from Medicare) and have them pay instead. I'm particularly interested in their durable medical equipment benefit which would cover braces and like.

The Mestinon I started taking recently is officially a great help with my slow bowel motility, but much less helpful for my endurance, so the cumulative effect has been weight gain. Not that I couldn't stand to gain, but I'm frustrated at the fact that I'm homebound and more than a little frightened by the fact that I might have hit the "wall" in terms of treatment options. Well, not necessarily in terms of options, but in terms of what my doctor is willing to do.

Adding to this has been the Al Gore summer we've been having. My father had to put an portable air conditioner in my room because the heat was making me so sick. I found that I slept much easier when I stayed cool as well.

For all these reasons and more, I want it to be fall right away.

7 comments:

Em said...

had a few days of unbearable heat over here, luckily stopped now, too much for my chest to breathe properly. glad you have an a/c unit will helps heaps. love reading your posts, although a day in the life of a potsie isnt so good, its nice to read others stories experiences of the condition, makes me feel less alone. take care. xxxx

Yvette said...

I never liked the heat, but now I hate it. I just want to stay in a/c all day long (and sometimes all night too.)

I'm glad you like my posts. That means a lot. I worry sometimes, because I'm very aware that most of my subject matter is POTS and EDS and my attitude isn't as positive as some who are blogging about the experience.

But it helps me a lot to talk it out online, and if it helps other people too, even better.

I hope the rioting ends soon. I had to look online for a story about it because the US is allergic to world news. Stay safe. I'll be thinking of you.

Anonymous said...

Hi! I'm a 22 year old black female and I want to say that I really enjoy reading your blog. I don't have POTS or EDS, and before encountering this blog, I've never heard of it. I think your writing and what you have to say is so interesting. I hope that you receive the medical treatment you deserve + need. Sorry if this comes across creepy, I am not creepy I promise!

Keep writing~

Jilly said...

glad you got your insurance :D yay!

Yvette said...

Hi anonymous friend! I don't think you sound creepy at all. In fact, I'm thrilled that my blog is interesting despite the narrow (and kind of depressing) subject matter.

Thanks for commenting!

Yvette said...

Jilly, ME TOO.

Ashley Ashbee said...

Hi Yvette,

I'm sorry your health/insurance stuff has been giving you such a hard time. It's remarkable how the heat affects so many types of illnesses. My IST seems to be going away, but heat was definitely a trigger, so I feel for you. It's hard to associate sun and warmth with feeling like garbage.

Fall is a lovely time!