I had a wonderful doctors' appointment yesterday. Wonderful enough that I must name names. Today I have to hand it to Dr. and Dr. Chelimsky, a husband and wife team who specialize in autonomic neurology and pediatric autonomic gastroenterology, respectively.
They listen. They are always respectful, never blaming patients for their own conditions. And they are bursting with good ideas: medications to try, treatment modalities, referrals to other helpful doctors.
The neurologist felt that the symptoms that scared me so this summer might be related to migraines, and I'm preparing to try the medication he recommended. I wasn't so thrilled about the idea of trying to raise my heart rate on purpose through vigorous exercise, but I'm willing to give it a try in a pool (as opposed to on dry land) where I feel pretty good, thanks to the weight of the water giving me and my ill-functioning veins and good all over squeeze.
I left the appointment filled with optimism. As opposed to other appointments, that I've left feeling defeated, or at worst, in tears.
Today I am 30, and I'm over being upset about it. Whatever else, it's simply going to be a different sort of life.
2 comments:
im glad you found some docs that we listen and try out different forms of treatment. i found when i was diagnosed help was at hand, even though eds is rare, now the docs know what they are dealing with, i think it helps living so near london too.
coming to terms with a different, unconventional life is hard. im still trying to get my head around this concept. although all my life ive been anything but normal! when you body decides to rebel without your consent its a different matter.
happy birthday. x
This is good to hear! I'm glad you got some good news on your birthday.
:)
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