The number one aim of moving to Philly with my younger sister was to find a doctor, period. In doing that, I hope to eventually get my pain managed well enough to pick up one of the adjunct positions in the city. Poorly paid, no benefits, but just right for someone who's trying to navigate and with luck, escape the poverty trap of disability.
It's so hard to be optimistic. Since my geneticist diagnosed me I've seen nothing but bad doctors. I was especially saddened that not even a doctor who had experience in treating EDS was willing to treat the pain. I could tell she didn't trust me, but what I couldn't discern was why. Is it even worth it to try to get to the bottom of it?
My instinct tells me that once I see a doctor who's fully familiar with EDS, things will go more smoothly. I hope. Because if I can't find a doctor here, I'll have no choice but to go slinking back to Ohio.