tag:blogger.com,1999:blog-2558261371882389486.post6193790110112442337..comments2024-02-22T16:38:06.483-08:00Comments on transballad: No One Needs EDS Awareness More Than DoctorsYvettehttp://www.blogger.com/profile/08238800725707477277noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2558261371882389486.post-88387738309582804242010-05-24T14:26:38.836-07:002010-05-24T14:26:38.836-07:00I don't understand what happens to doctors and...I don't understand what happens to doctors and nurses when they finish their training and go out into the world that makes them just seem to stop learning or questioning. Not all of them are like this, but I think your description of them as demigods (which made me laugh bitterly, but it was soo good) is accurate.Chronic Geekhttps://www.blogger.com/profile/11874082907283680556noreply@blogger.comtag:blogger.com,1999:blog-2558261371882389486.post-41739676570036348782010-05-24T13:29:20.729-07:002010-05-24T13:29:20.729-07:00Ashley here! Thanks for the detailed answer to my ...Ashley here! Thanks for the detailed answer to my question and the link to my blog!<br /><br />I think when we say "invisible illness" it encompasses more than what we see by looking at a person. It involves what isn't easily found through medical tests. Unfortunately, if there isn't an easily detected problem, doctors don't always seem to be interested in helping or even doing further investigation. I agree, I think part of it's arrogance; I also think a lot of doctors are more in the business of treating than caring. If it's not potentially life threatening, at least according to their perception, you might have to fight harder for treatment. It seems to me that your doctors were more willing to believe the tests than your narrative. <br /><br />I also have a couple of little-known conditions. It can be very frustrating when only your specialist understands your condition... Otherwise, you have to educate doctors who may be... well... Less than willing to listen.<br /><br />I'm taking a break from a Public Relations certificate... I really want to work for a not-for-profit organization dealing with social health issues in an awareness and engagement capacity. These organizations educate the public, doctors and other health professionals -- and even the government about conditions, and they also provide support to those affected. Do you have an EDS organization in your country or local area? I think you would be great at doing some advocacy. <br /><br />I think it's great you are so informed about your condition and are doing what you can to help yourself.<br /><br />I will continue reading your blog, of course! I want to know how you're doing!Ashley Ashbeehttps://www.blogger.com/profile/05268928207063175136noreply@blogger.comtag:blogger.com,1999:blog-2558261371882389486.post-50596116497317206532010-05-21T14:07:38.410-07:002010-05-21T14:07:38.410-07:00Cool! Yes - emailed.Cool! Yes - emailed.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2558261371882389486.post-45618792784849366642010-05-21T12:43:55.608-07:002010-05-21T12:43:55.608-07:00Jilly,
Yes absolutely! I saw you were off and I w...Jilly,<br /><br />Yes absolutely! I saw you were off and I was worried about you. Do you have my e-mail?Yvettehttps://www.blogger.com/profile/08238800725707477277noreply@blogger.comtag:blogger.com,1999:blog-2558261371882389486.post-37321308367760915232010-05-21T10:38:21.781-07:002010-05-21T10:38:21.781-07:00xoxo
I'm off facebook - are you still going to...xoxo<br />I'm off facebook - are you still going to ednf conf in july? jillyAnonymousnoreply@blogger.com